Thursday, February 19, 2015

Where do I go from here?

The point of the surgery was to remove all lesions/cysts in hope they wouldn't grow back. My pain was was greatly reduced for a few months and I am so thankful for that! Recovering from surgery was a different story. My doctor told me that the endometriosis was so bad she had to cut some of it off before she could begin to use the laser. I began crying happy tears after they told me because I was ecstatic they found the answer to my pain! My biggest fear was coming out of that operating room with no answer. The next week brought me the worst pain I've ever felt. No amount of pain killers helped and I had happened to start my cycle the day after surgery. Since my body was trying to heal at the same time it caused endless pain. The 4 months after that things were actually bearable! But now I'm back where I started. There are only a few options I have read that have left women with a somewhat pain free life. 
1. They had children and miraculously the pain went away 
2. They had children followed by a hysterectomy 
3. They began seeing holistic practitioners who used Chinese medicine combined with the "endo diet" and it decreased their pain tremendously. 

First off, I'm not exactly in the place to have a child. I've been dating my amazing boyfriend for almost 2 years but we aren't in the right place for that. Though we are trying to get on it, especially since my fertility is at risk. Second, I desperately want to have children so a hysterectomy is way out of the question. For the last option, I am so exhausted from the pain and fatigue I am open to any option. The main part of the endo diet is eliminating soy, gluten, and dairy. After surgery I began slowly eliminating those foods and hope to eventually eliminate them completely. It has been extremely hard, especially when you are in a rush. I have been communicating with a woman with a lot of knowledge on endometriosis who has written a book (Alone in the Crowd) about the disease and what has helped her ease the pain and symptoms. My next steps are to make an appointment with an endometriosis specialist, a pain management doctor, and a naturopathic physician to hopefully help in some way. I am determined to stay positive and remember there are 176 million women going through this with me. 💛💛💛

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